slider1 slider2 slider3

Over 0 JHD Patients, Familiy & Carers have benefited

Welcome to Sheenam's Wish A charity set up in 2011, to support others with Juvenile Huntington's Disease. Sheenam wants to put smiles on faces,
for those who deserve it the most. Providing days out and trips that may not be possible, our Small Gestures and have made Big Differences.
JHD is a rare neurological illness. There is no Cure Help Us Create Smiles.

"Where there's a wish there's a way"!

Helping children with JHD

Helping Children

YOU CAN DONATE TO SHEENAM'S WISH WITH LOCAL GIVING, CLICK ON THE BUTTON BELOW OR CONTACT US.

Ensuring better life

Sheenam Understands. We want to bring smiles to those around JHD. With funds raised we give surprises and gifts, special days out, making lives better!

Education for all

There is not much publicity or public knowledge when it comes to JHD, Let's help everyone understand JHD.

CLICK ON THE DONATE BUTTON TO GIVE VIA LOCAL GIVING

Our children and FUNDRAISING stories
  • img

    Melissa Shanahan

    "I would like to thank you so much for giving me the money to enable me to take my horse to the beach for the day.
    I have always dreamed of galloping up the beach and i had the most amazing day it was brilliant!"

  • img

    Amollak

    "We were able to do something as a family and make some very special memories for the future. We were able to drive up to Venice - whilst we were in Italy and have a ride in the famous gondolas which my son wanted to do. Thank you from the bottom of our hearts"

  • img

    Lauren Cadby

    "Had a blast at bowling. Thank you Sheenam for the gift of enjoying this and for meeting you".

  • img

    A Special Boy

    A request was made from a family for a football signed by Wayne Rooney. His dream came true with the help of everyone supporting Sheenam's Wish. Thank You x

  • img

    Theme Parks

    Sheenam's Wish has been able to contribute towards many families being able to enjoy days out a theme parks across the UK. With your continued help and support we can bring more smiles to more children suffering with JHD.

How can you help?

What is JHD?

When George Huntington first identified Huntington disease in 1872, he suggested that the disease affects adults only. It is now known that Huntington disease can occur in individuals at any age in their life - young or old.When someone who is 20 or younger develops symptoms of Huntington's disease, they are classed as having Juvenile Huntington's disease (JHD). So effectively 'JHD' means a young person with Huntington's disease.

Is JHD common?

Less than 10% of cases of Huntington's disease come in the Juvenile form. When you consider that Huntington's disease itself is rare, this highlights just how rare JHD actually is. For reasons which have only recently become clearer, most people (around 90%) with JHD inherit the gene from their father. The reason for this is that the CAG repeats tend to be less stable when passed from the male. In general, CAG repeats usually increase a little when passed from generation to generation. So after a few generations of the gene being passed on, the likelihood of getting symptoms earlier in life also increases.

Why do people get JHD rather than Huntington's Disease?

Huntington's disease is hereditary - that means that it can be passed down, from parent to child, through genes in our DNA. Genes are passed to you from your parents - that's why you might have hair like your dad, or brown eyes like your mum. We have thousands of genes, and they are all sectioned into different segments in our DNA. These segments are known as chromosomes and in total we have 23 pairs of chromosomes. The reason we have 'pairs' of chromosomes is because we inherit one from each parent.

 

If you would like to help raise money for Sheenam's Wish please read on

You can help Sheenam's Wish to help others with JHD by fundraising, providing ideas for us or donate. Please click on our Donate Link on the homepage or email us: sheenamswish@gmail.com Thank you for your help, Sheenam x.

img

Donate Now Via Local Giving

Young people and their families with Juvenile Huntington's Disease are often socially isolated. Sheenams Wish will enhance the quality of lives of young people and their families by creating lasting happy memories.

img
Who is behind sheenams wish
img

Sheenam Oberoi

Founder, 5th November 2011.

"I set up Sheenam's Wish to enhance the quality of lives of young people with Juvenile Huntington's Disease. This website provides information on the disease and ways of supporting us".

Sheenam's Wish is to help others also with JHD, raising funds and providing some well-deserved treats for patients and carers of this devastating neurological condition. The disease is hereditary and there is currently NO cure. Many Thanks, Sheenam x

.

Paramjit Oberoi

Secretary, Sheenams Wish.

We have received so much support in making this charity a reality. Everyone who has donated with your precious time and money, It really means a lot to us and our charity will benefit greatly. From us all at Sheenam's Wish, Thank you from the bottom of our hearts xxxx.

img
img

Chair, Trustees & Members

Chair  Ila  Gamble

Treasurer Sarah Smedley

Secretary Paramjit Oberoi

Trustee Sarah Eley

Members, Eloise & Louise Trevatt 

 

Recent Programs
img

Shane Nicholson to Have Proact Testimonial

26th July 2016

“Not only is it a chance for me to say thank you to everyone who has supported me over the years, but more importantly be able to help a young special lady called Sheenam, who has suffered from Junior Huntingdon Disease (JHD) for the last 13 years”.

...read more

img

SHEENAMS WISH 5KM FUN WALK

14th October 2012

A BIG THANKS TO ALL THAT PARTICIPATED IN SHEENAMS 5KM FUN RUN. WE RAISED OVER £4,000. CLICK READ MORE TO CHECK OUT OUR LATEST SLIDESHOW OF THE DAYS EVENTS!

...read more

img

SEASON TICKET CONTRIBUTION

MAY 2016

"A Great Big Thank You for the gift of £100 as this was able to help towards Reece get a Season Ticket for his favourite football team. He is on the waiting list for a wheelchair accessible ticket. Thank You very much, he has a huge smile!"

img

ELLIE'S MEMORY

JANUARY 2016

"Thank You so much for the generous gift of £100 that was sent to us in Ellie's memory, we are hoping to have a bench or a tree planted at Ellie's old school in her memory".

..

Contact us
imgYour message has been sent successfully.
img Sorry, error occured this time sending your message.
imgPlease enter your name.
imgPlease enter your valid E-mail ID.
imgPlease enter your message.

For any enquiry please use the form to the left or send us an email.

Email

sheenamswish@gmail.com

Spread the word